Kristin Smedley Download

Download March 30th, 2016

 

 

 

cure-retinal-blindness-foundation Kristen Smedley, President and Co-Founder, Curing Retinal Blindness Foundation joins Marilyn to share all the details of her non-profit organization, CRBF which funds research to lead to treatments to slow the progression of blindness and ultimately restore lost vision. Kristen’s two sons are blind due to mutation in the CRB1 gene causing a very rare and very severe retinal degenerative disease called Leber’s Congenital Amaurosis. To help raise awareness and funding, they’re hosting “Cocktails for the Cure,” this Friday, April 1st at Spring Mill Manor. Please listen – Kristen is delightful as is the story of her two sons, who don’t let their disease effect their quality of life…they are both award-winning braille readers and white cane users and nothing slows them down! Visit www.crb1.org/cocktails for more information.

 

Podcasts you may like

Her Story

Kathy Romano presents “Her Story,” a weekly tribute to women every Sunday morning at 7:30am on 95.7 BEN FM. She will introduce you to another woman making a major difference in the lives of others by helping tell “Her Story.”

Play Latest (May 23rd)

290 episodes

Our Delaware Valley

Our Delaware Valley introduces you to the people and organizations making a difference in our community, from health and safety issues, to education, employment and even entertainment opportunities. Our Delaware Valley looks for solutions and positive action to make our region a better place to call home.

Play Latest (May 16th)

142 episodes

Theme Parks and Rec Podcast

Theme park enthusiasts Rachel and Micaela talk all things fun on this podcast based out of Central Florida! With their connections and passion for rides, food, character experiences, and adventure, you will hear the latest theme park buzz and get tips and tricks on how to maximize your experiences. New episodes are available every Thursday!

Play Latest (January 19th)

168 episodes

Geek Culture Congress

The Geek Culture Congress podcast is hyper focused on everything “Geek”, ranging from topics about the Marvel and DC comics universes, cinematic universes like the MCU, their TV universes like Disney Plus, The Arrowverse, DC universe app, Netflix and popular science fiction and fantasy shows like Star Wars, Star trek, Masters of the Universe, Stranger […]

Play Latest (May 22nd)

290 episodes

PG: Parental Guidance (Needed)

Roxanne and special guests share parenting mishaps and milestones. With crazy schedules for parents and kids and the added distraction of tech everywhere you turn, they are less dishing out parental guidance and more seeking answers on how to parent in today’s world.

Play Latest (May 20th)

171 episodes