The Childrens Tumor Foundation Download

29:24 Download February 1st, 2022

From the Children’s Tumor Foundation, Simon Vukeli, Chief Marketing Officer, and Volunteer and Philly Cupid’s Undie Run Race Director, Sandy Frenia, discussed Neurofibromatosis (NF), a chronic disease in which benign tumors grow into the patient’s nerves.  Depending on the severity, it can be undiagnosed until late in life or cause serious complications such as seizures, blindness, deafness, immobility or other impairments.  In some cases, it can lead to rare cancers.  The disease is genetic and that is why the Foundation became the Children’s Tumor Foundation, you are born with it, 1 in 3,000 births.   Diagnosis comes from tell-tale birthmarks or through developing symptoms.   The Foundation directly funds research, referrals and hosts the world’s largest NF Conference.  
Looking to raise money volunteers created the Cupid‘s Undie Run, a ‘brief’ fun run that happens in the middle of a party.  In Philadelphia, it will be Saturday, February 19 at Xfinity Live!  Guests wear their ‘Bedroom Best’ to help fund the research for a cure, better treatment, and education programs.
For more information visit ctf.org
To register for the Cupid’s Undie Run go to cupids.org

Podcasts you may like

Our Delaware Valley

Our Delaware Valley introduces you to the people and organizations making a difference in our community, from health and safety issues, to education, employment and even entertainment opportunities. Our Delaware […]

Play Latest (July 10th)

53 episodes

Her Story

Kathy Romano presents “Her Story,” a weekly tribute to women every Sunday morning at 7:30am on 95.7 BEN FM. She will introduce you to another woman making a major difference […]

Play Latest (July 12th)

338 episodes

Theme Parks and Rec Podcast

Theme park enthusiasts Rachel and Micaela talk all things fun on this podcast based out of Central Florida! With their connections and passion for rides, food, character experiences, and adventure, […]

Play Latest (January 19th, 2023)

168 episodes

Geek Culture Congress

The Geek Culture Congress podcast is hyper focused on everything “Geek”, ranging from topics about the Marvel and DC comics universes, cinematic universes like the MCU, their TV universes like […]

Play Latest (July 15th)

353 episodes

PG: Parental Guidance (Needed)

Roxanne and special guests share parenting mishaps and milestones. With crazy schedules for parents and kids and the added distraction of tech everywhere you turn, they are less dishing out […]

Play Latest (October 6th, 2023)

180 episodes